Music's Like a Snuggie for Your Soul

MUSIC'S LIKE A SNUGGIE FOR YOUR SOUL
Showing posts with label #fuckepilepsy. Show all posts
Showing posts with label #fuckepilepsy. Show all posts

Thursday, September 27, 2018

Foof

Life can be such a gut punch.

My older cousin has had seizures for a while now. For one reason or another we weren't in direct communication at the time. I'd talked with my aunt in regard to things that had been helpful on my own seizure struggle bus ride.

Yesterday, my aunt woke up with two sons. When she got home, she only had one. My cousin died from a seizure while he was alone at work.

This is his 10 year old son.


Dang. Some days it all seems so exhausting and miserably futile. Why bother when the gremlins are set to pull the rug out from your feet again and again? Can I just stay curled up down here forever? Send puppies and kittens. 

Wednesday, November 22, 2017

Out of Dodge [Still in the Brambles] (pt. 5)

Okay, going back to the tail end of July/early August. It seems so long ago, but I suppose I'm still reeling. 

Shortly after swooping onto the scene, my mom emerged victorious in her rounds with Dr. Bugpoop and co., thus freeing me from the hospital confines. She waited before driving home so she could accompany me to an appointment with my primary care doctor the next day. 

It's an hour and a half home and I don't remember any specific details from the trip.

I was a little bit less on the swerve by my appointment time the next day. I remember most of the dialog. At the end, my physician turned to my mom and said, "Yeah, I just lost a 26 year old with epilepsy in my practice. She died in her home a few months ago." As if our time in the ICU and a life flight helicopter ride hadn't already conveyed the gravity of the situation. Thanks for putting my poor mother at ease, doc!

Well, not as much progress as i'd hoped, but some. To be continued, (yet again).


May your Wednesday be wondrous. 

Love and kindness from Moscow.