tag:blogger.com,1999:blog-4697939792620679837.post5071497647534619798..comments2023-09-06T00:34:33.543-07:00Comments on carpe dieming in the garden: The Axelrod Family and more about AEDsAjaxhttp://www.blogger.com/profile/15272210468592329126noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4697939792620679837.post-3034966455709276332012-12-01T00:26:09.411-08:002012-12-01T00:26:09.411-08:00Awesome. They definitely seem like the kind of peo...Awesome. They definitely seem like the kind of people i'd like to take on a river trip or drink a beer with. Keppra was definitely not my cup of tea. It's incredible how people can respond so differently. <br /><br />I've definitely gathered from those-in-the-know that once you've failed a good number of them, your chances go down pretty drastically from there. <br /><br />We're all shocked about the kidney stuff. I was sure i was totally out of the woods with kidney issues after i got off of Dilantin. I don't take anti inflammatories or anything. I'm definitely getting more opinions; lamotrigine has worked the best out of anything so far. I'm loath as fuck to let it go just yet. And God willing there's newer, less dirty alternative to Depakote.Ajaxhttps://www.blogger.com/profile/15272210468592329126noreply@blogger.comtag:blogger.com,1999:blog-4697939792620679837.post-78199622077322779162012-11-29T23:30:06.818-08:002012-11-29T23:30:06.818-08:00And I'm surprised to hear about the kidney stu...And I'm surprised to hear about the kidney stuff with Vimpat -- is it from the Lamictal? Depakote is such an old drug -- Sophie was on it when she was just a baby. I can remember that the big issue with it is stomach irritability -- it wasn't effective for Sophie's seizures, but I've known many a kid that's been on it long term with great success. I'm keeping my fingers crossed for you, dear.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-4697939792620679837.post-2403462929122607212012-11-29T23:28:05.283-08:002012-11-29T23:28:05.283-08:00Lauren found seizure control on Keppra. My Sophie ...Lauren found seizure control on Keppra. My Sophie started taking Keppra around the time Lauren did, when it was approved for use, but you know our story. I am all for hope, but it's the rare kid that finds seizure control after that many drug medications. The Axelrods are an awesome family, though, to whom we are all indebted. I met Susan once, many years ago when I founded an organization called PACE (People Against Childhood Epilepsy) in NYC with three other families. A couple of years ago, we folded into CURE. They're AWESOME.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-4697939792620679837.post-57054175441084782262012-11-29T13:24:29.527-08:002012-11-29T13:24:29.527-08:00Hope. It's something, isn't it?Hope. It's something, isn't it? Ms. Moonhttps://www.blogger.com/profile/09776404747858099919noreply@blogger.com